ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(98 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,280

120,780

Yesterday at 9:29:55 AM
in Most people don't realize: bees don't die...
by mdrdan

Living with ALS

(16 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,931

16,194

5/18/2026 7:03:44 PM
in My ALS Book
by mdrdan

ALS Advocacy

(10 Viewing)

Discuss strategies for increasing public funding and attention

519

3,253

6/4/2026 3:22:13 AM
in CDC ALS Registry in the US
by blueinsincere

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

352

1/4/2026 4:20:47 AM
in Als a fascia injury
by dave.swati2@gmail.com

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(7 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

292

3,595

4/1/2026 8:29:51 AM
in When Should You Consider Professional Movement...
by ntuc

Forum
ALS Topics
ALS Research & Treatments (98 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,280 Posts: 120,780
Latest Post: Yesterday at 9:29:55 AM in Most people don't realize: bees don't die... by mdrdan
Living with ALS (16 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,931 Posts: 16,194
Latest Post: 5/18/2026 7:03:44 PM in My ALS Book by mdrdan
ALS Advocacy (10 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,253
Latest Post: 6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 64 Posts: 352
Latest Post: 1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (7 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 292 Posts: 3,595
Latest Post: 4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc

Latest Posts
Most people don't realize: bees don't die from pesticides alone. On hot summer days millions die from dehydration — beca by mdrdan (ALS Research & Treatments)	Yesterday at 9:29:55 AM
US FDA updates guidance to speed up drug development by mdrdan (ALS Research & Treatments)	Yesterday at 9:24:59 AM
This man with ALS is “the first power user” of a brain implant that lets him speak by mdrdan (ALS Research & Treatments)	6/20/2026 4:19:44 PM
Voice Back by mdrdan (ALS Research & Treatments)	6/17/2026 4:17:12 PM
2026 Annual Conference: Embryo Law and Ethics {interested in stem cells, you might be interested in this conference} on 16 June by mdrdan (ALS Research & Treatments)	6/12/2026 2:49:08 PM
much more complete chart . . . by mdrdan (ALS Research & Treatments)	6/12/2026 2:34:18 PM
FDA MedWatch - Early Alert: Positive Pressure Breathing Device Issue from Baxter re: Volara System by mdrdan (ALS Research & Treatments)	6/12/2026 2:27:20 PM
US FDA MAUDE database remains out of service . . . (back in service . . . 12 June 2026) by mdrdan (ALS Research & Treatments)	6/9/2026 10:45:07 AM
Early Alert: Breathing Circuit Set Issue from Hamilton Medical by mdrdan (ALS Research & Treatments)	6/9/2026 10:02:29 AM
CDC ALS Registry in the US by blueinsincere (ALS Advocacy)	6/4/2026 3:22:13 AM
Best Ivermectin 12mg Tablets \| Safe & Reliable Healthcare by genericusa (ALS Research & Treatments)	5/27/2026 3:23:56 AM
Team Gleason makes Forbes Accessibility 200 list! by mdrdan (ALS Research & Treatments)	5/19/2026 4:13:26 PM
My ALS Book by mdrdan (Living with ALS)	5/18/2026 7:03:44 PM
New Possible treatment by mdrdan (ALS Research & Treatments)	5/13/2026 12:52:23 PM
Herpes virus mimicking ALS by mdrdan (ALS Research & Treatments)	5/5/2026 3:33:38 PM

Active Users
	179 active users - 0 members, 179 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,463 posts in 12,270 topics in 6 forums. Last post Yesterday at 9:29:55 AM by mdrdan. We have 46,551 registered members. The newest member is eventuniversity.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (98 Viewing) Discuss the latest ALS-related scientific and medical findings	9,280	120,780	Yesterday at 9:29:55 AM in Most people don't realize: bees don't die... by mdrdan
	Living with ALS (16 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,931	16,194	5/18/2026 7:03:44 PM in My ALS Book by mdrdan
	ALS Advocacy (10 Viewing) Discuss strategies for increasing public funding and attention	519	3,253	6/4/2026 3:22:13 AM in CDC ALS Registry in the US by blueinsincere
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	64	352	1/4/2026 4:20:47 AM in Als a fascia injury by dave.swati2@gmail.com
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (7 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	292	3,595	4/1/2026 8:29:51 AM in When Should You Consider Professional Movement... by ntuc