ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

Hosted by the ALS Therapy Development Institute (ALS TDI), each event begins with brief presentations from guest speakers and then invites the community to ask questions and engage in live discussion.

See upcoming events below and click the register button to sign up.

ALS Town Hall

The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.

See upcoming events below and click the register button to sign up.

Upcoming ALS Town Halls

The Les Turner ALS Foundation's My ALS Decision Tool™ and ALS TDI's ALS Trial Navigator

My ALS Decision Tool™ and the ALS Trial Navigator

Thursday, March 12, 2026 | 3:00 - 4:00pm

Join us on March 12 at 3 p.m. ET for a one-hour virtual town hall focused on empowering people living with ALS to make informed decisions about clinical research participation. The event will feature two ALS organizations and their innovative tools designed to support individuals and families navigating ALS:

• The Les Turner ALS Foundation – My ALS Decision Tool™ Presented by Anne Marie Doyle, Director of Community Education, this session will introduce a guided decision-making tool that helps people with ALS explore whether participating in clinical research aligns with their goals and values. The tool provides clear, personalized information about the role of research in advancing scientific understanding and potential treatments.

• ALS Therapy Development Institute – ALS Trial Navigator Presented by Emily Dhondt Beatty, Associate Director of Community Education, this segment will highlight the ALS Trial Navigator, including its Guided Trial Finder. This interactive resource walks users through a step-by-step questionnaire to identify their priorities, understand key research terms, and receive personalized clinical trial matches. Additional features such as the Trial Map, Trial Browser, and personal trial-saving portal will also be showcased.

This town hall offers a supportive space to learn about trusted tools that can help you navigate clinical research options with confidence.